Alivia and Elly

03 Jan, 2013

by Jenna Kashou

There was no dance floor so they created their own. Their dance moves were abstract, like the jazz. They were show stoppers – at just two feet tall. Who were these two little angels dressed in matching zebra print and ruffles at the Mason Street Grill? “People often mistake them for twins,” says Stacey, their mom. “They love to perform for others and make people smile and laugh. They are best buddies.” Elly is two and her sister Alivia is one – they are 13 months (to the day) apart and they’ve got serious rhythm.

Elly and Alivia

Elly and Alivia

Like trying to grab a slippery fish out of water, Stacey chased after her daughters as they continued to gyrate and giggle. She finally grabbed a hold so she could introduce me to these little dancing machines.

Goldberg Family lives in Chicago, but has been back and forth to Milwaukee ” so many times, we have stopped counting” in the past three and a half years. At just two years old, Elly has been to the hospital more than I have (and is probably a lot braver).

Because Stacey was 39 when she was pregnant with Elly, doctors recommended a more thorough “level two” ultrasound at 20 weeks of pregnancy. Doctors thought at the time  that Elly would be born with a congenital lung disease referred to as a CCAM (congenital cystic adenomatoid malformation) so the pregnancy was closely monitored. There was a growth of unhealthy tissue mass in Elly’s left lobe of her lung.

“Prior to Elly’s birth, we met with specialists both in Illinois and Wisconsin. We were incredibly impressed with Dr. Casey Calkins at Milwaukee’s Children’s Hospital. His broad knowledge, experience with this type of condition, and wonderful ability to connect with the children and families made him, without doubt, the number one choice for Elly’s medical journey,” reveals Stacey.

Miraculously, Elly came into this world asymptomatic, but needed a CT scan shortly after birth to determine the specifics of the mass, which they determined was a pulmonary sequestration. “It  is even more unique in the sense that it is a mass of nonfunctioning lung tissue that lacks normal connection with the tracheobroncheal tree and receives an anomalous blood supply and in Elly’s case, to the aorta,” said Stacey, although she might as well have been speaking Greek. She is no doctor herself, just (most obviously) an incredible mother committed herself to her daughter’s care.

Imagine being 40, four months pregnant and taking your 6-month-old baby to have the lower left lobe of her lung removed.  Dr. Calkins performed a thoracic surgery that created just two small incisions on her left side of her body. Both the physical and emotional scars from the surgery are minimal and quickly fading.

Milwaukee has become a special place for the Goldberg family throughout their journey and tonight they are celebrating the holidays together as a happy, healthy family at the Pfister.  Though they love Dr. Calkins, The Goldbergs were ecstatic to learn in July that Elly would no longer be under his care, without further follow-ups. Elly’s left lobe has been replaced with healthy lung tissue because the smaller the lung, the quicker it regenerates.

Stacey remarks, “We have found our new ‘home away from home’ at The Pfister. What a special place. The people in Milwaukee are delightful, warm, and so friendly. Milwaukee provides a big city feel, at a level that meets the needs of everyone.” The Goldbergs will most definitely be back to Milwaukee in 2013, under much happier circumstances.

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About the author

Jenna Kashou

A Milwaukee native and freelance writer, Kashou has published in local publications such as Milwaukee Magazine, M Magazine and the Shepherd Express. Find her weekly adventures of city life as MilwaukeeMag.com's ‘Girl About Town.’ Kashou earned a bachelor’s degree from the University of Iowa in mass communications and Spanish, and a graduate certificate in digital storytelling from Marquette University. By day, she is a grant writer for Radio Milwaukee and has worked in the nonprofit sector in arts and education for 10 years. In her spare time, she enjoys dabbling in everything from being a DJ and photography to do-it-yourself deco, yoga and rock climbing.

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